I’m not a complicated person – I’m not fussy. I’m not difficult.
I’m not a brat.
I’m not picky.
Not at all. Take me to a football game, I’m happy. Take me to a boring play, I’m happy.
But my body isn’t. My body is complicated. My body is fussy. My body is difficult. My body is a brat. My body is picky. Very picky.
And it’s pretty frustrating when all I really wanna do is enjoy a new Manhattan restaurant or go hiking up the Rocky Mountains.
But it’s not that easy.
Because, well I’m just pretty gosh darn complicated.
I have hypothyroidism.
I have Leaky Gut.
I have heavy metal toxicity.
I have an IGA deficiency.
I have candida.
I am allergic to gluten, dairy, soy, corn and numerous fruits as well as certain oils and sugar.
And now, the latest…
Last month, I was told…
I have Lyme Disease.
My life is complicated. That’s simply all I can say at this point.
Dating is hard.
Explaining myself is hard.
Trying to figure out why my body hates me is hard.
But I just stay positive and keep my head up high.
Because there’s a reason for all of this…
Yes, I believe there is a reason that I am going through all of this. There is a reason for why my body is complicated. There’s a reason I spend 10 hours of my day just taking care of myself like an infant – detoxing, healing, soothing and nurturing my body – when all it does is react back to me in a negative way.
I’m honestly hoping this is the end of my diagnoses. I am hoping my treatment for Lyme Disease makes everything better. I am praying that I will soon be normal. Feel normal.
To be able to go out to eat. To be able to go out on a nice date. To be able to worry a lot less about how I’m going to feel the rest of the day, the week, the month, the year.
I’m really hoping.
And I don’t ask for a lot.
Truly, I don’t.
But I’m asking Santa for an early Christmas gift this year.
Because I just can’t take another diagnosis.
I’ve received countless letters from all of you these past few years and I love having all of you in my life. I’m sharing all of this with you today because I care deeply for each of you – even though I don’t know many of you personally. I care about your health and your well-being and that’s why I started this website – to help you and to heal myself on this journey that I have been on the past 7 years.
I’ve learned so much and I’ve healed many parts of my body. But the healing has just begun.
I’ve started treatment for my Lyme Disease and I’m not giving up. I’m eager to learn about this disease, to heal myself and to help all of you and everyone else who’s bodies are attacking them. I’ve learned that my Lyme Disease has been in my body for almost 10 years and has been trapped within the biofilm of my stomach. I find it amazing that I never had a tick bite, a rash or a bulls-eye yet years later, this disease has wreaked havoc on my body in so many ways.
This is all very new to me and I am on a biofilm protocol to kill off the pathogens and heal once and for all. Seems like the reason I haven’t completely healed 100% is because of this biofilm and how it’s not letting me heal. I will be sharing my Lyme and biofilm treatment with all of you soon but for right now I will not be sharing any information and I hope you understand that. I welcome your comments but please know I will not be sharing information until I learn more so that I can help all of you. I will be creating pages on my website dedicated to biofilm and Lyme to help others who need the support.
In the past, my Lyme Disease results were all NEGATIVE. I’ve learned that it takes going to the best of the best labs in the country and spending thousands of dollars out of pocket to get a true diagnosis. Just another sad issue about our whole medical profession. Just to think that this Lyme Disease is what was causing me to be sick all along and now after 10 years of suffering… I’m just learning this.
The saddest part is that I had to figure this all out on my own. No doctors ever suspected this or found this until I researched and dug and dug and dug for more information and learned what tests I should be doing.
I haven’t yet shared this Lyme Disease diagnosis with anyone other than my parents, my sister and two of my best friends but I felt that I need to tell all of you. Because I am an honest person. I’m not complicated. I’m not fussy. I’m not picky. I’m just me.
Little me. Healing and living.
And never, ever giving up.
Ever.
xox
Ingredients
- 2 brown rice cakes
- 3 Tbsp. well-stirred creamy almond butter
- 1/4 tsp. coconut flakes
- 2 Tbsp. dried cranberries
- 1 Tbsp. finely chopped fresh basil
- 2 tsp. pumpkin seeds
- 1/4 tsp. fresh lemon zest
Instructions
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Lay rice cakes on a flat surface. Spread almond butter onto each rice cake using a knife. Top with remaining ingredients.
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Serve immediately.
Lots of love Amie!
It’s so sad that so many seem to be going through such health struggles and missing out on so much. And yet, it seems you are getting more from life than so many people who may have it all but never fully experience/appreciate it. Life is now and you seem to do well at living the joys that come your way. It means, I’m sure, that there will be an even greater depth to the joys to come.
This site you have created is such a source of positivity and healing and shows you have that in abundance within you.
Perhaps Louise Hay / Lissa Rankin could be helpful in the process of further nurturing this healing energy and allowing the problems and illness to dissipate…?
May you find whatever help you need.
Good luck <3
Thank you so much Maisie!! Yes I have looked into their work; thank you again!!
Amie,
I have been reading your posts for a while and I really enjoy your recipes. I also have Lyme,Co-infections, Celiac disease (gluten and dairy free), blood clotting disorder (caused by Lyme), and chronic migraines. I was undiagnosed for 15 years and have been in treatment for 5 years. I am starting treatment for biofilms, but I dont tolerate a lot of meds due to poor detoxing by my body. I so understand all you are going through. Hang in there. You will learn a lot more than you ever wanted to know.
:). Healing thoughts coming your way.
Thank you Cindy!
Amie,
I know anything I say will sound cliche, however, speaking totally from my heart I want to express to you that you are such a special, unique lady and you have a HUGE purpose – to help us all. I am sorry to hear about this diagnosis, but you are such a source of strength, I know you’ll come out with flying colors. It’s been so amazing to work with you and get to know you, and I wish you all the HEALTH, healing, love and success in the whole world. YOU deserve it! xoxo Lisa
Thanks Lisa; you are so great! Thank you so much!!
Amie,
I have only just recently found your blog, but I am so glad that I have. I have been battling with adrenal fatigue and the myriad of problems that stems from it (hypoglycemia, low blood pressure, fatigue, digestive issues, poor immune function, over reactive allergies, not to mention mental health issues…etc!) for over 2 years, but only just recently got the proper diagnosis and help from an integrative MD. It’s difficult to find people who are dealing with similar issues online that share them with such honesty and positivity as you do. Your posts give me a boost of positive energy and hope. I am also glad I found you because once I started eliminating tons of foods (digestive issues as well), I was despairing of what I could eat despite all the limitations. I am sorry about this new development in your health saga, but perhaps this is the missing piece of the puzzle for helping you truly heal. I am also awaiting lab results for Lyme disease, and if they are positive, at least I’ll know where to turn for suggestions and support. You are a lovely human being, don’t give up. Your light shines through your posts and really touches your readers. I also believe that everything happens for a reason, and have been trying to work through these difficult times by learning to adopt a more Buddhist perspective – of living one day at a time, or learning to let go of attachments and plans. Meditating, praying….being in the moment. I totally feel your frustration about wanting to live a “normal” life. I feel like I’ll never meet another guy again – I’m always at home!! And always having to say no when people offer you food, or having to eat before going to a restaurant…Some days are better, some days are worse, and it’s like a roller coaster ride; never knowing whether you’ll be up or down. I had so many dreams for when I finally finished university, and ended up just burning out at the end of it all! I am really impressed by your ability to create a blog, take wonderful pictures, create such delicious, beautiful, healthy recipes despite having so many food restrictions, and also making a business out of your healing process by helping others heal. I really admire you, and all you have accomplished, and your unswerving dedication to researching and learning about what can heal you when no health care professionals were doing it for you. Really, really badass. You never gave up. I aspire to turn my misfortunes into such a beautiful lesson on life such as you have.
Thank you so much for existing. Sending you the most positive vibes and love from Montreal! 🙂
Wow; thank you so much. This is great!!! So kind of you.
Like I said in my email, you are force of endurance and determination in the face of all of these struggles…truly an inspiration. Thank you for sharing your story and for being so real and honest. A lot of similar stories here. Sad how misunderstood Lyme is. Sending you good health vibes and loads of positive energy. Xo
Awe; thank you Kim.
Hello Amie,
Myself having had many, many diagnoses over the years understand the ‘frustration’ you are having with the medical professionals. That is why I decided (after 4 degrees from Purdue) I would get my PhD in Natural Health at the age of 62 in 2011. It takes patience and perseverance for sure to uncover the ‘real-inner’ issues that are keeping one’s body from homeostasis for sure, as you know. By sharing with others this will help your healing journey and others to keep on exploring all of the healing paths to better choices for health promotion. Congratulations on your staying power and now with your protocol progressing (hopefully with a ND on your health team) I wish you health & healing!
Thank you Patryce; you are the best!!!!
I have been on a similar path and know how frustrating it can be. I actually ended up discovering that Lyme was not my primary issue, but most of my symptoms and the rampant inflammation that was making life miserable were actually caused by mold illness (I was being exposed at home and at work) and the Lyme, viruses, parasites, etc. were just opportunistic infections that had been lingering deep in my body, brought to the surface by a traumatic experience and the subsequent mold exposure. Have you heard of Dr. Horowitz? He’s an NYC-based physician who specializes in Lyme and is highly regarded by Dr. Klinghardt and his team in Seattle (my saviors on this journey). I just wanted to mention him in case this information could be helpful to anyone looking for answers. I know that for me, it has been life-changing to feel like I am in good hands.
I am 25 and have been sick for 3 years; I often feel like I am watching the ‘best years’ of my life fly by. While friends are dating, falling in love, traveling the world, getting married, and having children, I am spending everything I make on doctor’s visits, treatment protocols, supplements, and organic food. It feels so unfair at times. My mom has been my rock and the greatest source of support on this journey. It sounds like you have some close friends and family to help you along the way. I think that’s so important.
I hope you find the answers you’re looking for and that peace and healing fill your body, mind, and spirit. God bless you and good luck!
Thank you so much Kristyn!!
Just saw your comment and had to reply- I’m 25 as well and it’s so hard to feel like this is what we are spending our”best years” doing and looking at Facebook or Instagram makes me feel so alone sometimes in what I’m dealing with. Somedays it’s hard to stay positive but I know we will make it through this and be better women for it!! I’m so thankful for my mom too- I can’t imagine not having her thorough all these difficult years. I think our best years are yet to come!!
Thank you Emily so great to hear from you! oxxxx
Wow Amie, I want to give you a huge hug. I really had no idea, and I’m sorry for that. I love your attitude – everyday – regardless of your obstacles and challenges you are facing. You are seriously an inspiration. I hope you get your early Christmas present 🙂
And I wanted to tell you, my latest obsession has been rice cakes with nut butter and fruit preserves. Perfect afternoon snack 🙂
Thanks Aggie; hugs back to you!!
Wow! Reading this makes me frustrated for you. Knowing it has taken 10 years to diagnose something like Lyme disease. BUT…like everyone else has said, you are an inspiration. I have been dealing with some gut issues since this last October which put me out of work and struggling to find the right foods to eat and energy to do anything. Lot’s of tests later, still no answers, and still having issues. Going through this whole process and reading about your experiences has taught me no matter what happens, and how hard it is, it’s so important to stay on the bright side; and know that there is a way to find help.
Thank you for sharing.
I’m so sorry to hear about the Lyme diagnosis, Amie! I had the same problem with my diagnosis. No warning, no rash, and my body just kept revolting against me. My joints hurt, my head hurt, everything upset my stomach. And 4 years later, I was finally diagnosed. I was on antibiotics numerous times, for varying lengths of time until finally, 2 years and multiple negative tests later, I no longer felt the need to get tested regularly. Even though I was on probiotics throughout, I still ended up with awful issues with my stomach. Doctors call it IBS. I think it’s more like BS. Finally, finally, a doctor tested my levels of yeast, and they were all sky-high. We got those under control, and everything has been far better since then. I have flare ups from time to time, but at least I know how to better manage them when they do happen! I hope your treatment goes well and that it helps solve some of your issues!
Thanks Katie; you are so kind. Glad you are feeling better and thank you again!
I am always inspired by your attitude. In person and in your posts. xoxo
Awe; love you Laura; thank you so much. I miss you!!!
I have hypothyroidism too. And take meds for it :(. Can I ask if you take pills or have you found better way to treat it? Thanks
Thanks Laura I take GTA Forte for my thyroid it’s not a medication … it’s just a supplement!
I have also had most of these diagnoses. I honestly think they are all pretty popular diagnoses for us with on going chronic issues and even for some with more minor issues/symptoms. I’m figuring it all out slowly but surely! The best thing I have done is not let any of the diagnoses define me or join Lyme groups because most of them are filled with negativity and false information.
I truly believe these things happen for a reason as well. It is a complete blessing in disguise if we let it be. It gave me something to be passionate about and guided me down a path towards self love and deeper enlightenment. Good luck! Stay strong and know you will be well because you will!
Look forward to hearing more! 🙂
I did a double take when I saw this post pop up in my Facebook feed. I am a rising high school senior. I was diagnosed with Lyme disease and two other parasitic infections in November of 2012 but I have been sick for the past 7 years. This disease is a mess and I get how frustrated you must be feeling right now. It is frustrating to have been on treatment for 7ish months and only see small signs of improvement. But those small
improvements are more than I have seen in years! Before that, I was continually declining. So try to stay positive! Lyme has turned my life upside down but it has also given me something to work for-I am now completely determined to help people because no one should have to go through this.
Also, if you haven’t already, I really recommend reading Cure Unknown by Pamela Weintraub. It’s long but I though it did a very good job explaining the controversy surrounding Lyme.
Thank you Lauren; you are so kind. Working with great doctors and really looking forward to getting better soon!!
Amie, you are my inspiration!
Awe; thanks Marta. You are so kind. xox
Amie, it sounds cliche to say it, but you are SUCH an inspiration (to me, and all of your readers). I agree with Mer above–the strength you demonstrate daily, both in spirit and determination, is incredible. If anyone can beat this, you can. I, too, hope this is the final diagnosis for you, and the one that finally allows you to heal and get back to “normal” (well, maybe not *really* “normal”–that would be boring–but “healthy”!!) 😀
Hugs & love to you! xoxo
Love you Ricki; thank you so much!
You are seriously the strongest person I know. Not many people could go through everything you have gone through and keep going the way you do, creating delicious recipes, working your tail off, sharing your story to help others, taking care of yourself and still making time to ask how everyone else is doing. At a time when you can stop trying and just say why me, you continue amaze me and so many others with your strength and dedication to your work, friends and family. Keep it up Amie Jo, you’re almost there : )
Thanks Mer; love you so much!!
Much love to you Amie for your tenacious positivity and your love for everyone you meet even in the midst of physical pain and frustration. You are one strong soul.
Your attitude is positively inspiring. Best of luck to you. I sincerely hope this is your last diagnosis, too!
Thanks Olivia; hugs!!!
Oh Amie! My goodness you are so strong! What a beautiful, heartbreaking post but hopefully the beginning of better health. Better days. You deserve it, that’s for sure. I am sending you strength and healthy vibes and all my support. You are amazing.
Heidi xo
Thanks Heidi!!! You are so kind!